If you are living with sarcoma, the CURE Drug Repurposing Collaboratory (CDRC) would like to learn from your experience to help identify potential new treatments to improve quality of life or identify treatments causing harm.
Sharing your story, knowledge, and experiences is one of the most powerful ways to advance sarcoma research and improve lives.
If you are living with sarcoma or you are a care partner, you can help:
- Sign up here. This should take you just a few minutes. You will almost immediately receive consolidated access to your medical records and a comprehensive Care Summary.
- Answer a short survey about the treatments you have tried (after registration)
How is my data used?
CURE ID and the CDRC are partnering with xCures to collect data on drug repurposing in sarcomas through Electronic Health Records. CURE ID is an FDA-funded initiative hosted by NCATS/NIH to crowd-source information on how drugs are used in clinical practice, especially for diseases that have few or no approved therapies.
The drug repurposing data that xCures collects will be de-identified and made HIPAA Safe Harbor Law compliant (HR7898) to protect patients’ identities. In doing so, CURE ID will be able to publicly release each deidentified survey and analyze these data to generate hypotheses that a repurposed drug is either effective, does not alter outcomes, or is harmful. Having this information made publicly available can generate interest in testing these hypotheses in clinical trials.
Partners & Collaborators
